Wyatt's Condition

Wyatt is doing much better. This morning he didn’t look good and was struggling to breathe. He had a lot of fluid around his lung as his chest tube wasn’t draining properly and that was causing him some problems. Since then they repositioned his chest tube and his 11am x-ray looked better and now his 6pm x-ray even better. His lung fully expanded and he seems to be doing better. He should spend at least one more day in PICU. I am hoping that tomorrow he is back to formula again as he still is only taking only IV Fluids. I was talking with his surgeon today he told me that Wyatt was something else.  He said this birth defect of no left diaphragm is usually seen on ultrasound or discovered immediately after birth and is corrected between weeks 2 to 4 after birth.  He said in many causes the babies need to be on a ventilator.  He has heard no cause where a baby has lived for almost 11 months with this condition and in Wyatt's case, he didn’t even need oxygen until recently and even then it was only at night.  I am trying to do some research on this condition and to validate what I was told but so far I have found next to nothing on this subject.  Any readers of this blog have a baby born missing half a diaphragm?  If so, I would love to hear from you. 

In case you missed what happened with his surgery yesterday, when Wyatt was opened the surgeons were surprised to find that his left diaphragm was missing.  I wish I was there as this was his fifth surgery and the diaphragm, or so they thought, was seen on the previous four.  The surgeons built him a new one and attached it so that now he has the separation of stomach and chest.  Wow, I was stunned to hear that this was the case after surgery.  I suspect that now his breathing should be much improved as well as his eating and hopefully finally put him on tract to spend more time at home and less time in the hospital. 

SUPER WY!!