I think one of the most difficult decisions a parent has to make is a decision concerning medical treatment or surgery for a child when he or she is unable to tell you exactly what hurts or how they are feeling. The decision is easier to make if the situation is dire or that person is in immediate danger or if it involves life or death. The situation with Wyatt is very complex and involves many issues. I am trying to process each issue to make the decision that will provide the best care for him not only today but for the rest of his life. Wyatt is having multiple issues right now from feeding, diaphragm, lung and others. All or some may need to be surgically repaired. Wyatt has proven after each operation, even minor, that he struggles to recover and the post op has proven to be a critical time for him. His diaphragm repair is a major surgery that will require his chest to be completely opened and his recovery will be painful and take days afterwards. I have requested a surgeon who has operated on him in the past. Due to the complexity of the issues and the fact multiple concerns may need to be addressed during surgery, at least two pediatric surgeons will be needed. As all of this is being evaluated with multiple specialists, this process it is taking a few days to complete. Wyatt may not be fit to go into surgery several times and the load on his body and recovery also need to be considered. He is in pain from time to time and I feel that the doctors are treating his pain as well as possible. Unfortunately, pain is present.
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