Friday, January 28, 2011

Wyatt's Condition


Wyatt is doing much better. This morning he didn’t look good and was struggling to breathe. He had a lot of fluid around his lung as his chest tube wasn’t draining properly and that was causing him some problems. Since then they repositioned his chest tube and his 11am x-ray looked better and now his 6pm x-ray even better. His lung fully expanded and he seems to be doing better. He should spend at least one more day in PICU. I am hoping that tomorrow he is back to formula again as he still is only taking only IV Fluids. I was talking with his surgeon today he told me that Wyatt was something else.  He said this birth defect of no left diaphragm is usually seen on ultrasound or discovered immediately after birth and is corrected between weeks 2 to 4 after birth.  He said in many causes the babies need to be on a ventilator.  He has heard no cause where a baby has lived for almost 11 months with this condition and in Wyatt's case, he didn’t even need oxygen until recently and even then it was only at night.  I am trying to do some research on this condition and to validate what I was told but so far I have found next to nothing on this subject.  Any readers of this blog have a baby born missing half a diaphragm?  If so, I would love to hear from you. 

In case you missed what happened with his surgery yesterday, when Wyatt was opened the surgeons were surprised to find that his left diaphragm was missing.  I wish I was there as this was his fifth surgery and the diaphragm, or so they thought, was seen on the previous four.  The surgeons built him a new one and attached it so that now he has the separation of stomach and chest.  Wow, I was stunned to hear that this was the case after surgery.  I suspect that now his breathing should be much improved as well as his eating and hopefully finally put him on tract to spend more time at home and less time in the hospital. 

SUPER WY!! 

10 comments:

  1. Isn't it amazing what has transpired in the medical world over the years!
    Thinking of you and yours and sending prayers upward.

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  2. Your little SUPER WY is a mystery as well!! But a well loved, cutie patutie of a mystery!! We are SO very glad they found the problem, and pray Wy is on his way to a healthy, happy life with Shane, Jessse, Mom & Dad He has the best family..and has gained a larger than life one this last week.

    Liz, Mike, Tori & Family!

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  3. yeahhhhhh soooo happy to hear still will be prayin for SUPER WY and alex is doin a lil better tonite he was diagnosed with a severe sinus infection .....much love and strength to yall and wyatt and prayers always <3
    andrea , lil alex and family :) <3

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  4. Oh this is wonderful news! I truly hope this is the "fix" Wyatt needed! He truly is an amazing little boy!

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  5. way to go super wy! continued prayers for his complete healing! hugs from floridian super wy!

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  6. He is proof what strong babies we have! Also shows what good care you and mommy have given to those precious boys!

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  7. All Ollie had to contend with this past 10 days is the chest drain....your little fella is a trooper and an insipiration to us all. Stay strong, we are all rooting for you!!xx

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  8. Super Wy is just that... SUPER! What an amazing little boy with a wonderful will to live. He and his brother will take this world by storm! :o)

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  9. What a little soldier you have!!! I will keep sending up the prayers for healing and health for the little dude...and the whole family. Smooch him for me!

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  10. Wow this is incredible. I am a Mother of a cdh daughter myself. I once read of a 40 some year old man going to the doctor for a severe cold to learn that he had cdh. I don't understand it either. Glad to hear your little guy is hanging in there. I'll be praying for him and you as well. Hospital life is no fun. I'll bet he will bounce back fairly quick. He is so precious.

    You can read Ava's story at http://avaslifewithcdh.blogspot.com If you have any questions feel free to email me at mycdhlife@gmail.com

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